All persons have individual rights that are not to be infringed. Individual participants in investigations have, the right to decide what happens to the personal data gathered, to what they have said during an investigation or an interview, and also to any photograph that was taken.
Therefore it is important that all participants gave their informed consent in writing prior to inclusion in the investigation. Identifying details (names, dates of birth, identity numbers, and other information) of the participants that were studied should not be published in written descriptions, photographs, and genetic profiles unless the information is essential for scientific purposes and the participant (or parent or guardian if the participant is incapable) gave written informed consent for publication.
You can use the below form to obtain consent for publication from the participant.
Consent form
I …………………………….………………………………..………….... [Name] give my consent for information about myself/my child or ward/my relative (circle as appropriate) to be published in
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[The journal of parathyroid disease, manuscript number, and corresponding author].
I understand that the information will be published without my/my child or ward’s/my relative’s (circle as appropriate) name attached, but that full anonymity cannot be guaranteed.
I understand that the text and any pictures or videos published in the article will be freely available on the internet and may be seen by the general public. The pictures, videos, and text may also appear on other websites or in print, may be translated into other languages or used for commercial purposes.
I have been offered the opportunity to read the manuscript.
Signing this consent form does not remove my rights to privacy.
Name………………………………… Date………………………………….
Signed………………………………..
Author name………………………..
Date…………………………………
Signed………………………………
Please keep this consent form in the patient’s case files. The manuscript reporting this patient’s details should state that ‘Written informed consent for publication of their clinical details and/or clinical images was obtained from the patient/parent/guardian/ relative of the patient. A copy of the consent form is available for review by the Editor of this journal.